Brad’s Story: An Unexpected Diagnosis

Brad Tennis (left) with his husband Drew Roberts.

Brad Tennis loves running. For years, the meditative rhythm of his feet on pavement brought him peace like nothing else could. And it turns out, he was quite good at running as he  even qualified for the Boston Marathon. But while Brad was chasing his goals, unbeknownst to him, his heart was slowly deteriorating.

In November 2018, out of the blue, Brad was diagnosed with arrhythmogenic right ventricular cardiomyopathy or ARVC, a rare heart condition that causes the heart muscle to break down over time. ARVC increases the risk of abnormal heartbeats and chance of sudden cardiac death. Brad was fitted with an internal defibrillator and told he could no longer run. Doctors warned him that endurance exercise would only accelerate the disease.

Brad's Discovery: His Need for a Heart Transplant

After processing the news of this condition, Brad felt like himself for a while. But in 2020, he started experiencing Implantable Cardioverter-Defibrillator (ICD) shocks to halt life threatening arrhythmias. Despite numerous surgical and medical interventions, the shocks began to get more frequent. By 2023, the toll of the disease, the ICD shocks and the treatments led to progressing heart failure. By the end of 2023, he was feeling breathless on stairs, having trouble playing physically with his children and finding it difficult to keep up at work. His world was shrinking.

In February 2024, Brad started the process with Johns Hopkins Hospital to be listed for a heart transplant. A couple of weeks later, he had another shock, more testing and then a doctor put him on ECMO (extracorporeal membrane oxygenation), a life support machine that is used when a person's heart is failing. Soon after, he got the news of a lifetime: “There’s a heart available and today is the day!”

The Beginning of His New Journey: Focusing on Recovery

The organ transplant marked the beginning of a new journey. Brad focused on recovery — building up his strength, learning his new body and adjusting to life with a new heart. Last summer, he was cleared to exercise again and is enjoying playing with his kids — something he deeply missed.

"I would never say I'm back to feeling normal. I'm always going to have to carefully manage my stress and my activities to protect my health and my new heart,” said Brad. “But the transplant was lifesaving and means that I will be there to build a life with my husband and my kids."

Moving Towards a New Normal: Brad's Second Chance a Life

Brad is still moving forward. He and his family are enjoying life again — and he’s even bought a new pair of sneakers with the hope that he’ll be able to return to running regularly.

“Organ donation and transplant have reopened doors that I had thought were closed forever,” Brad shares. “It’s given me the chance to be present and have a full, happy life with my husband, son and daughter.”

His husband, Drew Roberts, adds, “Every day, I'm reminded of Brad's strength, resilience and bravery.”

Using His Voice: Advocating for Organ, Eye and Tissue Donation

Brad doesn’t take this lifesaving gift for granted and is grateful to his organ donor hero. “I think it’s an amazing thing — to give life and give hope. Even in tragedy, someone gave me a gift... a second chance. Everyone can register to be a donor and save lives like Brad’s at infinitelegacy.org.

Brad recently had the opportunity to advocate for organ donation with Infinite Legacy at ABC7 News in an interview. He spoke about his diagnosis and how thankful he is for his second chance at life. To learn more about Brad's story, check out his interview.

His two children even wanted to share how organ donation kept their family together and saved their dads life. Listen to their heartfelt words about their father and his gift of organ donation here.